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Rare Diseases Day 2022

Rare Disease Day 2022 shines a light on the global and diverse community of over 300 million people living with a rare disease and their families.


By telling the stories of real people all around the world who are living with a rare disease, this video hopes to show that while each rare disease is rare, as a community we share a lot. Every year this global, patient-led awareness campaign brings together millions worldwide in solidarity with the rare disease community. In 2021, thousands of events took place in over 100 countries, mobilising people living with a rare disease and their families, healthcare professionals, policy and decision makers, and industry and company representatives. We hope that this will grow even more in 2022! This video is translated in over 40 languages and disseminated globally by the 67 National Alliance patient organisation partners of Rare Disease Day.

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